Spinal tap and MRI

We checked in to St. Mary's Hospital this morning at 9:00 for Jacob's spinal tap, some blood work and an MRI. He was under anesthesia for the entire process. The spinal and blood draw were first and Jacob did great. Then he had to wait about an hour before they took him down to get his MRI, which took another 2 hours. The surgical staff was good about keeping us informed with what was going on, but it was still difficult to sit in a waiting room for hours on end when your child is going through all that. Finally at 3:30 we were called back to see Jacob. He was awake, but really out of it. After about 30-45 minutes, he got his IV out and we were able to head back to the hotel. It's now a little after 6:00 and he's had 2 cereal bars and something to drink. He is still unstable on his feet, but that is normal since he was under for over 3 hours.

Tomorrow will be our last day at the clinic. He has a follow-up appointment at 1:30 with Dr. Wirrell. She'll be giving us the MRI results as well as some preliminary blood work results too. Some of the larger tests (the chromosomal and genetic stuff) will take 3-4 weeks to come back. We originally had a 24-hr Epilepsy monitor appointment, but the doctor cancelled that (thankfully!).

We'll head back to Minneapolis first thing Saturday morning and may tackle some things at the Mall of America. They have a Nickelodeon amusement park and an aquarium we might take a look at. We'll see! Then our flight is at 7:00pm that night. Then it's back home to see the little kids! We are missing them SO much! Tonight they are with my good friend Angie and her two kids. I know they are having a great time!