Test results for Jacob

Great news! All of Jacob's blood tests came back negative today! We are very relieved and happy this part of our journey is done. Unfortunately, we have not been able to uncover an underlying cause for Jacob's white matter changes on his MRI. So, our quest for an answer continues. We will schedule an appointment with our local Neurologist to re-group and see where to go from here. Dr. Wirrell suggested a nerve conduction study to see if there is any involvement of peripheral myelin and to also consider muscle and skin biopsies to look for inclusions of mitochondrial disease. She has also recommended some baseline neuropsychology testing to help with Jacob's learning, behavior and developmental issues.

Again, we appreciate everyone's thoughts and prayers for Jacob (and us!). The power of prayer is awesome! Our prayer is that God will continue to reveal things to help our little Jacob! Kindergarten starts Monday and Jacob could not be more excited!!

Waiting...

Let's be honest... waiting stinks. It just doesn't stink, it sucks. We're on week 3 of waiting for these tests results to come back for Jacob and it's been so hard. We are trying to stay positive and hope for the best, but it's been a real challenge for us. I think because the seriousness of these tests is so great it's hard to feel at peace. This is such a big lesson for me... how to let go and trust that no matter what the outcome, I have to find peace. I read a quote this week - "Don't pray for an easy life. Pray to be a stronger person." So true, but so hard.

At this point, we are still waiting for a call from Dr. Wirrell from the clinic. I will keep everyone updated as soon as we know anything. Again, thank you to everyone for your thoughts and prayers!