Stanford

About 2 weeks ago, Jon's brother Chris called and told us that a neurologist at Stanford had offered to review Jacob's MRI scans for free and give us a second opinion! How did this happen? Well, Chris works with a lady who's husband is a researcher at Stanford. Chris was sharing Jacob's story with her and she then talked to her husband. He got talking to this neurologist about Jacob and he made the offer. Small world, right? I immediately jumped on the phone to get a copy of the MRI and as much information as I could. Within 2 days, I had the CD in the mail to the doctor for his review. A few days later he emailed me with a request for more information. Again, I immediately got what he needed. I knew this was a blessing from God and it was my responsibility to grab it! Yesterday, we got a call from another doctor at Stanford, the Chief of Pediatric Neurology to be exact, and he wanted to see us today (Friday). We made quick arrangements for the triplets and Jon got the day off. Today, Jon and I took Jacob to Stanford for his appointment. We saw 2 doctors who both did a thorough physical and neurological exam on Jacob. They asked us a million questions and reviewed all of Jacob's lab work. Their findings were exactly what Jacob's current neurologists' were - they don't know. Jacob's MRI shows two areas of white brain matter. One explanation could be an infection. They only way to know this is to repeat the MRI in another month or two and see if the spots have reduced in size or are gone. This would indicate a possible infection. But, weather or not this is related to seizures, we don't know. We still have a few blood tests out, so something may come back on those. In one way, I'm relieved nothing different came up today. I was nervous that something serious would be revealed. But on the other hand, I wanted to at least get a little more information about what's going on. It's SO hard knowing that your 4-year-old has two areas of white brain matter and Epilepsy, but you don't know anything else. It's scary. So at this point, we wait for more lab results. We repeat the MRI in a month or two. We have a hearing test (Oct 1st). We keep taking his medication. We keep praying...