It's been over two weeks now and no seizures for Jacob!! Yeah!! It appears the medication is working, thankfully! 80% of people who start on anti-seizure medication respond to it well. I'm so relieved we're in that 80%! We hear stories of others who go 2 or 3 years and can't find the right medication for them. Very frustrating I'm sure. We're just praying every day that it continues to work and keeps his little body safe and seizure-free. It's still a daily struggle for Jon and I... always wondering if he'll have a seizure or if the falling activity will start again. It's been hard for me being home with the kids all day. I'm constantly assessing every situation and thinking to myself, "ok, if he has a seizure right now, what would I do?" And I guess that's good and bad... good to be prepared, but probably not the healthiest way to spend my day. I worry about keeping Jacob safe, yet still taking care of three 2-year-olds. I can't watch him all the time and I have to let go of the fact that I can't control this situation. I think that's what it boils down to for me... I have no control of this and it sucks (to put it simply). As a mom of 4 small children, I've always tried to keep our lives under control in order to keep some sanity and calmness around here. But this situation is completely out of my control. I know that's the bigger lesson for me and I'm really trying to accept that and change, but it's a tough one. It is getting easier as the days go by, but it's always on my mind. I think it will always be on my mind.
I signed Jacob up today for an account with Medic Alert and ordered him a medical bracelet. I'm hoping that will give me a little bit of peace when he's not with Jon or I (mostly at school). I talked to his new preschool today and they were very supportive and will work together with us to make it the best possible environment for Jacob. That is a huge comfort for me. It's hard enough shipping your 4-year-old off to preschool 3 days a week, let alone your 4-year-old who has just been diagnosed with Epilepsy. Again, letting go of the control... who knew I was such a control freak!? :o)
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4 years ago